Pediatric Epilepsy Resources

These resources include resource guides, tips for parents, and more. Here you will be able to download useful safety information, including seizure first aid, a bilingual pictorial of seizure descriptions, and a teen guide to becoming independent.

Epilepsy and Seizure Disorders Resource Guide

• Bilingual Pictorial Seizure Description Form (PDF)
• Tips for Parents: Antiepileptic Medication (PDF)
• Traveling with a Child Who Has Epilepsy (PDF)

Diagnosing Epilepsy (Epilepsy Foundation)

Ready Set Go! A Guide to Becoming Independent (PDF)

Seizure Action Plan

• Seizure Action Plan (PDF)
• Seizure Action Plan Companion Video
• Seizure First Aid and Safety (Epilepsy Foundation)

What You Need To Know About Your Child's Upcoming EEG (PDF)

These Maine resources  ensure the best care, community involvement, and easiest access for your child's needs.

• Children Center
  The nonprofit Children’s Center provides quality, family-focused services for children; specializes in meeting the developmental needs of children with special needs by offering programs that encourage individual growth and development; provides support for their families; and promotes the inclusion of all children in the community.
• Consumers for Affordable Health Care
  For over 20 years, we have worked to protect the rights of healthcare consumers in Maine. We are a nonprofit, nonpartisan, research and advocacy organization committed to helping all Maine people obtain quality, affordable healthcare.
• MaineCare
  Formerly the Bureau of Medical Services, MaineCare was created to administer the Department’s major health care financing programs and health care benefits. MaineCare Services coordinates the programs and benefits, assures that they operate under consistent policy in keeping with the Department’s goals and Federal mandates, and provides the accountability necessary to determine that they are administered in an effective and efficient manner.
• Maine Department of Education
• Maine Parent Federation / SPIN
  The SPIN staff have experience as parents of children with disabilities. They can answer requests for information or help parents find the answers to more complex problems. SPIN also collaborates with parent organizations, state agencies, and other groups in Maine to expand opportunities available to families.
• Penquis CAP
  We assist individuals and families in preventing, reducing or eliminating poverty in their lives and, through partnerships, engage the community in addressing economic and social needs.

These New Hampshire resources ensure the best care, community involvement, and easiest access for your child's needs.

• Bureau of Developmental Services
  We offer service coordination, day and vocational services, personal care services, community support, assistive technology, specialty services, and flexible family support, including respite, and environmental modifications.
• Epilepsy Resource Prescription Card (PDF)
  This handy pocket guide helps New Hampshire families stay in touch with helpful organizations, providers and community resources.
• Medicaid
  This federal and state-funded program serves needy individuals and families who meet financial and other eligibility requirements and certain other individuals who lack adequate resources to pay for medical care.
• New Hampshire Family Voices
  We are parents who have children/youth and young adults with special healthcare and physical, developmental, and mental health challenges. We understand the challenges families face. We identify children with special healthcare needs based on the impact on their lives and their family's need for related services, rather than only on their diagnosis.
• Parent Information Center
  The Parent Information Center (PIC) is a recognized leader in building strong family/school partnerships. PIC provides information, support, and educational programs for parents, family members, educators, and the community. PIC is a pioneer in promoting effective parent involvement in the special education process.
• Partners in Health
  129 Pleasant St., Thayer Building, Concord, NH 03301
  800-656-3333

There is a nationwide network of communities working together for those living with epilepsy. These resources offer an opportunity to share with others what it's like living with epilepsy, giving you the chance to make connections with advocacy and family partnerships and organizations, summer camps, and regional epilepsy foundations.

• American Epilepsy Society
• Caregiver Action Network
• Charlie Foundation to Help Cure Pediatric Epilepsy
• Epilepsy Foundation
• National Association of Epilepsy Centers
• PACER Center

With links to secure chat rooms, international sites, educational resources, and interactive sites, these resources provide information about pediatric epilepsy as well as a safe place to interact with others who are in the same situation as you and your family.

• Epilepsy Foundation
  An extensive collection of resources and information for families and children
• Epilepsy Foundation e-Communities
  Online support group meetings for patients, families, and friends
• Talk About It
  Educating the world about seizures and epilepsy on behalf of the 50 million people with epilepsy around the globe

These resources include the best programs for financial support and prescription information.

• Professional Prescription Advice: A partnership bringing together America’s pharmaceutical companies, doctors, other health care providers, patient advocacy organizations, and community groups to help qualifying patients who lack prescription coverage get the medications they need through the public or private program that is right for them.
• Rx Assist: A nonprofit group that provides information to health care providers to help patients get medications.
• Rx Hope: A patient assistance company partially funded by pharmaceutical manufacturers for patients who may qualify for no-cost medications.